FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer

Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of Directors of the FSH Society, today announced that Mark A. Stone has been named president and chief executive officer of the 501(c)(3) non-profit after a … Read more of “FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer” »

FSH Society Awards $541,133 in Funding for FSH Muscular Dystrophy Research

Boston-based Non-profit Awards New Grants to Facilitate Search for a Cure BOSTON – April 5, 2017 – Today the FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy (FSHD), announced it has committed $541,133 in funding to five research projects that aim to break new ground in the search for a treatment and cure … Read more of “FSH Society Awards $541,133 in Funding for FSH Muscular Dystrophy Research” »

FSH Society honors leaders in science and advocacy

On November 11, the FSH Society honored four distinguished researchers and community members at their inaugural CureFSHD National Gala in Boston, Mass. The event, hosted by WBUR’s Morning Edition Host Bob Oakes, celebrated 25 years of progress towards finding a cure for Facioscapulohumeral Muscular Dystrophy (FSHD). The gala, which attracted more than 250 researchers, scientists, … Read more of “FSH Society honors leaders in science and advocacy” »

aTyr Pharma Receives FDA Fast Track Designation for Resolaris™

— First Reported Fast Track Designation for a FSHD Treatment — SAN DIEGO, Oct. 24, 2016 /PRNewswire/ — aTyr Pharma, Inc. (Nasdaq: LIFE), a biotherapeutics company engaged in the discovery and development of Physiocrine-based therapeutics to address severe, rare diseases, today announced that its product candidate Resolaris™ was granted Fast Track designation by the US Food … Read more of “aTyr Pharma Receives FDA Fast Track Designation for Resolaris™” »

FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD

(PRWEB) JUNE 14, 2016 The FSH Society, a nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy (FSHD) and their families, today announced that it has awarded a $121,000 grant to co-principal investigators Jeffrey Statland, MD of the University of Kansas Medical Center, and Rabi Tawil, MD of the University … Read more of “FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD” »

Dogs destined to develop muscular dystrophy evade their genetic fate

Golden retrievers with the Duchenne mutation show that disease-modifying genes may provide routes to treat a genetic disorder; possible parallels to facioscapulohumeral muscular dystrophy. Research led by Louis M. Kunkel, PhD, a member of the FSH Society’s board of directors and scientific advisory board, demonstrates that a disease might be treated by finding a gene … Read more of “Dogs destined to develop muscular dystrophy evade their genetic fate” »

Gene Interference Technology Used Against FSH Muscular Dystrophy Genetic Defect

Proof-of-principle study is the first to use CRISPR technology on the “repeat genome,” as well as its first successful use in primary human muscle cells BOSTON, MA (PRWEB) NOVEMBER 04, 2015. The FSH Society, the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy (FSHD), announced that an FSH Society-funded research team … Read more of “Gene Interference Technology Used Against FSH Muscular Dystrophy Genetic Defect” »

Gene interference technology used in FSH muscular dystrophy

Proof-of-principle study is the first to use CRISPR technology on the “repeat genome,” as well as its first successful use in primary human muscle cells BOSTON – (November 3, 2015) – The FSH Society, the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy (FSHD), announced that an FSH Society-funded research … Read more of “Gene interference technology used in FSH muscular dystrophy” »

FSH Society Beneficiary of Variety of Fall Fundraising Events

From PRWeb The FSH Society, the Massachusetts-based charity that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy (FSHD), will be the beneficiary of a collection of fundraising events this fall. From Boston to Los Angeles, each event has the same mission – to raise awareness of the FSH Society and … Read more of “FSH Society Beneficiary of Variety of Fall Fundraising Events” »